We built this at DementiaHacks Toronto 2015. The central theme was applying tech to all areas of dementia care and research including support for clinicians, institutions, persons with dementia, and researchers.
What it does
Our platform helps generate an electronic record of a person with dementia's social and medical history. This record will include information such as hobbies, interests, favorite music, medications, and degree of mobility. Using this information, new caregivers or members involved in the circle of care can seamlessly access everything they need to know to provide care to the person with dementia.
Why is this important? Imagine you had to hand over the care of a loved one with dementia to a new personal support worker (PSW). Later that night, you realized you forgot to tell the PSW about how agitated your father with dementia can become and how very specific songs can calm him down. Alternatively, you're pestered regularly by your siblings about how your father is doing. By using our platform, you can ensure that all necessary information is transferred between relevant parties, thereby cutting out hours and hours of your time that would typically go into explaining these details. As an added benefit, caregivers can take a look at the information you gathered and use them to start a conversation - maybe they can ask your loved one about a particular hobby.
So what makes us different? Long-term care homes gather similar information during the intake process, but this happens once your loved one has late stage dementia and you have less than a week to gather information and send your loved one to an institution. Our goal is to proactively start this information translation process right at the diagnosis. Not only will you gather richer information, but your loved one can be an active participant in the process of designing their own care. Unlike EHRs and clinical patient summaries, we focus on translating the social aspects of the person’s life, to provide the most personalized medical experience for the person with dementia. After an extensive search of the literature, we found that there is no tool that reaches our application’s capacity. Finally, we’re focused on providing a comprehensive, and holistic overview of care. We selected the questions in our record system by reviewing an extensive body of research, including initiatives spearheaded by the Ontario Ministry of Health. This positions us to provide richer, and more trustworthy data than what a family might record in a word document or notebook.
How we built it
We mocked up everything on paper and HTML/CSS/JS. Afterwards we built it with the full stack
Challenges we ran into
We were really focused on building a practical solution that would help caregivers, so we spent a ton of time looking at research evidence and conducting market research. Our team had a lot of disagreements during the ideation stage as a result, but we came through in the end.
Accomplishments that I'm proud of
What I learned
A lot about dementia. I think my whole team now has a stronger understanding of the challenges found across the spectrum of individuals involved with persons who have this condition. It would be great to see where our ideas can go or whether we can come up with anything else that can support care for persons with dementia.
What's next for CentraCare
Demo at DementiaHacks!