Dear all,
Thank you very much for your feedback and support. Many among you, especially academic researchers, pointed out that a) the questionnaire about exposure risks should be improved and b) the website is not scalable. We fully agree.
Indeed, if this project goes ahead we plan to 1) get in touch with field researchers to optimise the questions asked in the form and 2) the website must be done by the Federal Government. Indeed, it must be scalable, central and unique (many parallel initiatives would be very bad here) and last but not least trusted. We know you trust us guys ;) But anyone must trust the website and feel save in sharing his/her information.
A federal initiative for handling patient sensitive data is already in place in Switzerland through the Swiss Institute of Bioinformatics (SIB) and consists of dedicated infrastructure for data storage and deployment of analysis pipelines (Vital-IT) which would optimally fit the design of our R-code based prototype.
Hope this clarifies a bit better the actual implementation of the project.
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