Inspiration

Situation

Multiple EMR and EHR systems exist today resulting in high maintenance and operating costs for providers particularly. There is a struggle for standardization across these systems and only a few standards exist on the payer side (e.g. diagnosis and procedure codes). If a patient changes providers or sees multiple providers, often their health information is inconsistent at best and more likely resulting in very incomplete or inaccurate medical history.

Complication

  • Extraordinary operating costs to administer and maintain EHR/EMR systems
  • Extreme lack of portability of patient health information across providers
  • HIPAA and HITECH liabilities carried by providers and business associates -- Byproduct: Patient agreements essentially waiving privacy rights
  • Fragmented and unreliable information available to patients and providers
  • Fragmented and unreliable information available to research organizations and government agencies
  • Delayed access to patient health information (often when timely treatment is critical to healthier outcomes)
  • Prescriptions forged, lost, abused

Resolution

Our vision is for patient-focused and patient-controlled connected health records: a healthcare ecosystem where the patient is the heart of the public network and invites all other healthcare stakeholders to participate in support of the patient's health.

What it does

This system allows for the open registration of any healthcare participant be it patient, provider (physician, pharmacy, lab/diagnostics), research organization or government agency. Patients ultimately control access to various parts of their electronic health record (EHR), established initially upon registration with PCP and Pharmacy selections and agreements to share non-personally identifiable information with research and government organizations; modifiable through patient's application settings.

Other non-patient participants only see portions of the EHR that are relevant to them with various read-write abilities.

  • Physician: sees all patients where they are listed as provider and drills into patient's full EHR
  • Pharmacy: sees patients relevant medications
  • Lab/Diagnostics: specifies patient identifier and allows for import/upload of diagnostics data to patient's EHR
  • Research: sees non-personally identifying patient demographic information and lab/diagnostics across all patients that have given active consent
  • Government: sees non-personally identifying patient demographic information and medications across all patients that have given active consent

How we built it

Started with a fresh meteor installation and constructed all of the forms for creating and editing 6 unique types of users. Permissions and data access controls are managed through smart contracts done with Embark.

Challenges we ran into

Time time time. Lack of sugar. Merge conflicts.

Accomplishments that we're proud of

  • Storing larger chunks of data in IPFS and being able to retrieve them after undergoing a permission check
  • Getting to know a lot more about our teammates
  • Creating a meaningful start to a potential solution to patient health care data management and the healthcare industry as a whole

What we learned

  • IPFS interactions
  • Optimized workflows for rapid development (particularly ABI and meteor to front-end exchanges)
  • Reducing gas prices

What's next for My EHR Network

Maintaining patient-focus, further investigate market value and viable economic models for a self-sustainable network. Expand capabilities of the system to support more participants: other providers, payers, etc. Within the US (or other) market, launch a public pilot and obtain buy in / initial adoption from patient population and accelerator organizations such as large Pharmaceuticals or influencing payers such as Medicare / Medicaid.

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