Find your doctor

The project foresees unique way to use open data to solve issues of underserved and discriminated group of society – people with rare diseases and their caregivers, who would be the main beneficiaries in this project. Due to rareness of their conditions, these patients are often turned away or footballed by healthcare system and denied necessary care and treatment. Thanks to such project, they would easily find information about doctor competences in provision of care for rare diseases themselves. The project will help patient organizations to improve relationship with healthcare specialists and provide necessary help for individual patients, who use help-line services, therefore strengthening their advocacy efforts and patient education approaches. Project will help people with rare diseases organize their own healthcare, overcome long waiting times, one of most painful healthcare system problems in Latvia, and avoid visiting doctors with no competence in their condition. The project would also improve awareness of rare diseases, and would be a part of bigger patient education and empowerment campaign. We look for financing outside Latvia and local grant projects to ensure independence. This project also cannot be funded by regular patient organization supporters, such as pharmaceutical companies or individual donors, to, again, ensure independence.

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